FAQ
About EuRECA and Data Security
Who is the chair person and who is on the committee?
A: The EuRECA steering committee is chaired by Frank Keeley. Committee members include Brunolf Lavergeld, Tommy Neilsen, David Breen, Marco van Strijen and Alexander King.
How can I contact the committee?
A: Email eureca_assistance@outlook.com
Who owns the data?
A: The data is ‘owned’ by the EuRECA steering committee. Access to the data is possible only through requests made to the committee.
What is the level of security?
A: There are no patient identifiable data held by EuRECA. All data is anonymised and encrypted, stored on a secure server.
Participation
How can I participate?
A: Contact the committee by email eureca_assistance@outlook.com to determine if you meet the criteria established by the steering committee.
Where do I get a password to be able to log on?
A: Please send an email to eureca_assistance@outlook.com
Can I download my database directly into EuRECA?
A: No, you will be asked to enter data at the time of the patient’s procedure as part of this prospective registry.
Can I export my own data out of the EuRECA database?
A: Yes, this is possible by request for your own data only.
What is the difference between saving and submitting data?
A: Saving data should be done when you consider it incomplete. Once completed, please submit the data. After that point, the data can no longer be edited.
If I have mistakenly submitted data, how can I delete or alter a patient record or data related to a patient?
A: Once enrolled and saved, the patient’s data can only be deleted or altered after review by the steering committee representative, please email eureca_assistance@outlook.com
I have an idea for a study using EuRECA data. How can I take this further?
A: Proposals for studies can be submitted to the steering committee for consideration by emailing eureca_assistance@outlook.com